Advocacy
We found, during our independent research, that India has a very good National Health Program for Children, named “Rastriya Bal Swasthya Karyakram” RBSK. This program includes 30 Diseases that affect children. However, unfortunately, Type1 Diabetes is not included in RBSK, National Health Program.
- We also found that India has a very good National Health Program- regarding management of Diabetes of 140 crore people, named under the Non- Communicable Disease-NCD Program. But there is a hurdle. As per the guideline, this program is viable for only those people who are above 18 years of age.
- The lacuna upset us. No National Health Program, neither RBSK nor NCD includes Type 1 Diabetes Children (0-18 years) or its sustained scientific management.Hence Unfortunately The affected are not benefited under any National Health Program.
Advocacy efforts can make a significant impact on policy changes. Engaging with policymakers, influential figures, and community leaders is a crucial step in raising awareness and seeking support for improving the healthcare provisions for children with Type 1 Diabetes.
Learning from renowned experts in the field can provide valuable insights into international standards for Type 1 Diabetes care. There were some key takeaways and insights we gained from those meetings.
Raising awareness about Type 1 Diabetes in India, especially among children, is crucial to improve understanding and support. Improving the life expectancy of children with Type 1 Diabetes in India compared to other countries is another important goal to address through advocacy and support initiatives.
By our own expense, Traveling across India and to various cities in the USA to advocate for the betterment of Type 1 Diabetes in children must have been quite an inspiring journey. Bringing together organizations on a global platform shows our tremendous dedication to making a difference.
